We invite you to attend our 4th International Limb Girdle Muscular Dystrophy Conference, dedicated to finding safe and effective treatments for all forms of LGMD. Patients and families are central to this conference and every LGMD patient and caregiver is greatly encouraged to attend to help shine the light on the vast number of patients living with LGMD. We are pleased to be working closely with GRASP LGMD, a consortium of leading neurologists internationally, who will collaborate at our event along with major biotech companies on the cutting edge of emerging research. The overall mission of this conference is to provide momentum to developing treatments by bringing together key stakeholders in the field. The conference also focuses on making information accessible to our patient community while providing opportunities for social support, advocacy, and symptom management to help improve quality of life for individuals living with LGMD.
Conference Information:
When: Friday, July 18th - Monday, July 21st, 2025
Where: JW MARRIOTT GRANDE LAKES
Conference registration begins on Friday (7-18-25) from 3:00 - 6:00 pm at the Grande Registration Desk near the hotel's main lobby. Come early to register and be entered in all our giveaways throughout the weekend!
Official conference events will begin Friday evening with a reception from 6:30 -8:00 pm to welcome all attendees.
Hotel Reservations & Info
Please keep in mind that there are limited ADA-accessible rooms with roll-in showers at the JW Marriott. After you purchase your ticket, you will receive an email with the link to reserve your room at the JW Marriott. A reduced rate room block has been provided for attendees for $209/night (not including tax/fees).
JW Marriott Orlando, Grande Lakes
4040 Central Florida Parkway
Orlando, Florida, USA, 32837
Telephone: +1 407-206-2300
All the theme parks are within 15 minutes of our hotel location with multiple hotels nearby for overflow.
**Come early for registration on Friday and be entered into our giveaways throughout the weekend!
